Highlights from Big Freeze 8

Relive all the fun and excitement from Big Freeze 8.



Congratulations to the incredible @rhondaburchmore who has been named Queen of @moombafestival! As one of our fabulous Big Freeze 8 sliders, we can't think of a more deserving person! 💃💙 
#moombafestival #moomba #FightMND
We'd like to wish our incredible Patron, @nealedaniher a very happy birthday! From all of us at FightMND, we hope you're having a great day celebrating, surrounded by family and friends. You never fail to inspire us. Thank you for all that you do.
Pedal Cure 4 FightMND is returning in 2024 and this time it's bigger than ever! Taking over Tassie for 6 days, riders will be heading through Devonport, Launceston, Bridport, St Helens and Swansea as they aim to raise $350,000. 

And joining in 2024, Australian cycling superstar, Richie Porte will be hitting the road alongside Pedal Cure 4 FightMND cyclists to help fund game changing research and join us in the battle to beat the Beast.

Pedal Cure 4 FightMND is currently open for registrations for their 2024 ride, for more information and to register, visit
Saturday, February 11 was the International Day of Women and Girls in Science, so we'd like to take this opportunity to commend the incredible work of women who have committed their careers to leading the battle against the Beast. 

We'd like to thank them for their tireless research efforts that drive breakthroughs that will one day find better treatments and a cure for MND.
The Daniher's Drive will be back in 2023! Register your interest now to join our convoy of 300 people on a 4-day regional Victorian road trip. Visiting community townships, fun night events and the opportunity to meet new people, many of whom have been affected by MND, Daniher's Drive 2023 is not one to miss. 

The 2023 Drive will take place from Thursday, October 12 to Sunday, October 15 and will travel through Swan Hill, Shepparton and Creswick to support these resilient regional communities and raise much-needed funds in the battle against the Beast. 

Click the link in our bio to register your interest today!
Congratulations to Professor Matthew Keirnan from the University of Sydney for being awarded a clinical trail grant from FightMND in 2022. 

In the Phase 3 Clinical Trial, Prof. Keirnan and his team will test the effectiveness of a drug in a group of people living with MND who have changes in their UNC13A gene.

For more information about Prof. Keirnan's project and other 2022 grant recipients, click the link in our bio.
Thanks to everyone who has ever donated, held a fundraiser or volunteered their time, we have been able to do some pretty incredible things over the last eight years! 

With 2023 just getting started, we can't wait to see what's next. For more information about our impact, click the link in our bio.
Hit the ground running this year by registering to fundraise for FightMND in a running event! With Melbourne's running season kicking off in just a few months, now is the perfect time to start training. 

There are plenty of opportunities to get involved across the country, click the link in our bio for more information and register today.
Save the date for Monday 12 June, King's Birthday long weekend when we'll send a bunch of brand new celebrity sliders down into Australia's coldest ice bath before @collingwood_fc and @melbournefc go head to head for the Big Freeze clash.

We can't wait to see you there as we turn the @mcg blue in a sea of Big Freeze 9 beanies.
An Australian clinical trial has completed its first trial patient cohort of people living with MND. PharmAust completed recruitment in early December, and just successfully completed the studies first level dosing in all participants.

Funded by FightMND, the study is split between Calvary Health Care Bethlehem in Melbourne and the Centre for Motor Neurone Disease Research, Faculty of Medicine and Health Research Macquarie University in Sydney, with six people living with MND being administered steadily escalating dosages of lead drug candidate monepantel.
Aiming to determine the tolerability, safety, pharmacokinetics and preliminary efficacy of oral monepantel in people living with MND, all six patients admitted into the trial have elected to continue the treatment.
With recruitment for the next dosing level expected to begin later this month, PharmAust Limited hopes that monepantel could receive orphan drug designation by the FDA for MND.
For more information, click the link in our bio.
Congratulations to A/Prof Bradley Turner from The Florey Institute of Neuroscience and Mental Health who has been awarded FightMND funding in 2022 for a Clinical Trial. A/Prof Turner and his team will be assessing the long-term safety and effectiveness of ambroxol in MND patients.

For more information about this and our other 2022 Grant recipients, click the link in our bio.
Happy New Year! 2023 is finally here, and there are tonnes of ways you can get involved in the battle against the Beast over the next 12 months. We've pulled together a bunch of running events that you can get involved in across the country and fundraise for FightMND and now is the perfect time to start training. 

Whether it's a 5k, 10k or half marathon, chuck on your FightMND singlet and help us raise vital funds and spread awareness as we continue the fight against the Beast in 2023. For more information, click the link in our bio.
Happy New Year from all of us at FightMND! 💙🎆
We'd like to offer a huge thank you to everyone who has donated to this year's Christmas Appeal. Thanks to all of you, we will be able to continue to battle the Beast by funding the best and brightest minds in MND research. 
�There's still time to get involved. If you would like to donate, click the link in our bio�. Every dollar counts. �
With Christmas behind us and New Year's just around the corner, now is the perfect time to start planning your New Years Resolutions. Maybe you'd like to show more gratitude in your daily life, maybe you want to start journaling every day, or get better at recycling properly. 

Or, maybe, you want to finally run that marathon. We can help you there! Sign up as a FightMND representative in a run event in your state and you can tick off that resolution and raise much needed funds for a good cause. Click the link in our bio to find out more.
Motor Neurone Disease is a Beast. We'd like to take this opportunity to remember those who have died of MND, and recognise everyone who has lost a loved one, cared for a person living with MND, and all those who have taken up the fight with us this year.

It is because of all of you that we continue the battle against the Beast and why we are able to do all that we can. Together, we will one day see a world that is free of MND. 

In honour of all of you, we fight.
From all of us at FightMND, have a merry day! 🎅🎄🤶💙

Play On

MND is a Beast. It is an insidious disease without any effective treatment or a cure. But over the past nine years, FightMND has been able to make real change. With your support, we have invested over $69.3M in research that is beginning to show real promise.

We don’t know when the big breakthrough will come, but when it does, every single person who buys a beanie or donates to FightMND can know that they played a part in making it happen.

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