FightMND to invest $13.4 million into MND research

FightMND has announced that this year, the national charity will invest a further $13.4 million into Motor Neurone Disease (MND) research to find better treatments and a cure.

This major funding announcement takes the total amount that the Australian charity, co-founded by AFL legend Neale Daniher AO, has invested into both research and care initiatives to $76 million since it first began in 2014. In only eight years, FightMND has become one of the world’s largest independent funders of MND research.

Of the total $13.4 million investment, $10.9 million will go towards 19 MND research projects including two new clinical trials, two drug development projects, and 15 other research projects aimed at accelerating the development of innovative research and effective therapies for MND.

The remaining $2.5 million will fund six fellowships to support career pathways for outstanding, game-changing researchers in MND both in Australia and across the world. For the first time, three of these International Research Fellowships will be co-funded with the Healey & AMG Centre and ALS Finding a Cure®.

FightMND Research Director Dr Bec Sheean said that she was excited about the opportunity to help further strengthen FightMND’s role as a global leader in the fight against MND, giving Australians living with MND more opportunities to participate in research both in Australia and internationally.

“By funding the best, high-quality research and connecting the world’s most innovative MND minds, FightMND is playing a lead role in the global fight to find a cure for this devastating disease,” Dr Sheean said.

“This year’s projects look at MND from different angles – to understand the causes, support early diagnosis and track how a person’s disease is progressing as well as projects on developing better tools for studying MND in the laboratory.”

“Most importantly, these projects are focused on impact with goals to improve the lives of people living with MND,” Dr Sheean added.

FightMND CEO Dr Fiona McIntosh acknowledged the generous contribution and commitment of FightMND’s supporters throughout the year.

“It’s one of my favourite times of the year where we have the privilege of turning the generous donations we receive into promising research that will improve the lives of people impacted by MND, now and in the future,” Dr McIntosh said.

“Scientific research is expensive, and it is only thanks to your donations and ongoing support that we can continue to invest with determination and relentless urgency to win the battle against the Beast,” Dr McIntosh said.

“From funding the best research in the world as well as care initiatives that improve the lives of people living with MND, every beanie sold and donation made to FightMND makes a difference.”

FightMND would like to specifically acknowledge the generous contribution of the Federal and Victorian Governments as well as major partners in Coles, Bunnings, the AFL, Chemist Warehouse, Jayco, Herald Sun, Channel 7, community fundraisers and volunteers.

View the project summaries here:

Download the booklet here.

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By the numbers

  • Of the total investment in 2022, $13.4 million is allocated to funding 25 MND research projects, including:
    • 2 Clinical trial grants
    • 2 Drug Development projects
    • 3 Discovery Research grants
    • 10 IMPACT projects
    • 2 Collaborative Initiatives
    • 2 Mid-Career fellowships
    • 1 Early-Career fellowship
    • 3 International Research fellowships
  • The research funding is distributed among the following Australian states:
    • NSW – 5 projects, almost $3 million in funding
    • QLD – 4 projects, almost $1.5 million in funding
    • VIC – 8 projects, over $5 million in funding
    • WA – 1 project, almost $250,000 in funding
    • SA – 1 project, almost $500,000 in funding
    • TAS – 1 project, almost $1 million in funding
    • International – 5 projects, over $2 million in funding
  • FightMND received 71 research grant applications in 2022
  • Of the $69.3 million invested into MND research since 2014, FightMND has funded a total of:
    • 14 new Clinical Trials
    • 24 Drug Development projects
    • 35 IMPACT grants
    • 23 other research initiatives
    • World-first Drug Screening Platform
    • 11 research Fellowships and Scholarships
    • Precision Medicine Program
    • Sporadic ALS Australian-Systems Genomics Consortium (SALSA-SGC)

When you donate to FightMND, you help fund cutting-edge MND research focussed on fast-tracking new treatments as well as care initiatives to improve the lives of people living with MND.

Please support the FightMND Christmas Appeal and help bring hope to families who are living with MND. Join the fight and donate today.