An online scientific seminar series focused on motor neurone disease (MND) Research. Hear from national experts and emerging leaders in MND research including the latest clinical trials, drug developments, pre-clinical models, discovery research and collaborative platforms. Learn, connect and share with the Australian MND research community.
For enquiries related to the seminar series, please contact: Dr Sarah Bennett
Designing, developing and successfully implementing patient decision support tools is a challenging, intensive and extensive process. To ensure that the tools are fit for purpose for people with MND, we used an iterative co-design process with people with lived experience and MND care professionals, supported by MND care researchers. Once completed, the tools will be aligned to best practice MND care and international guidelines for patient-centred decision support tools internationally.
Dr Anne Hogden PhD, B SpPath, BA (Hons) is an MND care researcher. Her work focuses on the development and implementation of decision tools for people living with MND, supporting patients and families when they make difficult decisions for care. Anne developed the first MND patient decision tools internationally (https://mnddecisiontools.com/ ) and has been involved with further MND decision tool development in the UK and USA.
Anne is the Program Director for the Master of Health Leadership and Management with the School of Population Health, Faculty of Medicine & Health, UNSW, lecturing in safety and quality in healthcare.