From ideas to action: What happens after the Global MND Research Roundtable
When the 2025 Global MND Research Roundtable closed, the conversations didn’t stop. They sparked action.
The Roundtable brought together researchers, clinicians and experts from around the world. Together they had a shared goal: to make faster, meaningful progress against motor neurone disease (MND). Over two days, participants exchanged, debated, and refined ideas. Collaboration was key to deciding what matters most in MND research.
By the end of the Roundtable, there was a clear outcome. The group agreed on five clear, achievable priorities that could advance MND research. They emphasised that global collaboration is essential for making real progress.
From agreement to action
After the Roundtable, FightMND and ALS Canada developed a detailed report. This report ensures the priorities identified during the Roundtable lead to real change. The report included key discussions, decisions and agreed outcomes. It provides a clear roadmap for what needs to happen next.
But the Roundtable leaders knew that ideas only matter when they lead to action. The next step was to bring the right people together to deliver progress.
Building the teams to deliver change
Currently, working groups are being formed to take responsibility for each of the five priorities. These teams will shape and lead projects. They will strengthen collaboration and turn shared goals into action and meaningful outcomes.
Each group brings together leaders with different skills and experiences. Care was taken to include diversity across gender, geography, career stage, and lived experience with MND. Many participants are new to the Roundtable, adding fresh thinking and new perspectives.
The response from the global research community was positive. More than 90% of invitees accepted. Positive word-of-mouth from past participants inspired many participants to join. This engagement shows a strong belief in the Roundtable’s initiatives and collaborative approach.
What happens next
The next stage is already in motion. The first meetings for each group will begin in February. These meetings will mark the start of each project. Together, the working group will set clear goals and timelines for their activities.
A project manager funded by FightMND and ALS Canada will help move these projects forward. This role will provide crucial coordination and support across all groups and maintain momentum. Recruitment for this position is underway.
Why these outcomes matter
This structured, action-focused approach turns global discussions into real impact. The Roundtable is helping accelerate progress in MND research. By uniting experts and giving them clear priorities, strong leadership and proper support, we can move towards a future free from MND.
It’s encouraging to see so many leaders willing to share their time, expertise, and energy. Their commitment shows a shared belief: strategic focus and collaboration provide the best chance for breakthroughs.
Watch the Roundtable in action
Hear from participants about how global collaboration is driving the next phase of MND research in our Roundtable video.
The Global MND Research Roundtable is moving from conversation to action. These outcomes and next steps show real progress toward meaningful change for people living with MND.