Have you been affected by MND and would like to contribute to either improving MND care in Australia, or participate in research?

Please follow the links below to see how you can help: ​

The MND Lived experience driving team:

People with lived experience are invited to join the MND Research Collective through the Lived Experience driving team, supported by FightMND and MND Australia. Lived experience of MND comes in different forms: you may be living with the disease personally, supporting a family member or friend through their diseases, or have lost a loved one to MND. To learn more about the lived experience expert driving team, please follow this link.​

Clinical trials

Clinical trials test new treatments or interventions in people to find out if they are safe or effective. If you would like to participate in a clinical trial, your first port of call would be your neurologist or MND clinic. For a list of clinical trials with Australian location sites, please follow this link on MND Australia’s website.

The International Alliance of ALS/MND Associations Patient Fellows Program

The International Alliance of ALS/MND Associations Patient Fellows Program brings people with MND and their Carers into the discussions around MND Cure and Care at the International Symposium on ALS/MND, the Alliance meeting, and the Allied professionals forum. In 2024, the meetings will be held over a week, between the 2nd to 8th December, in Montreal, Canada.

The 2024 Application period is open between June 1st to June 28th 2024. Successful applicants will receive free conference registration, as well as limited assistance with hotel and travel expenses. For more information please contact [email protected]

Australians who are a successful recipient of the Patient Fellows Program may be eligible for a FightMND travel grant. Please contact [email protected] for further information.