Have you been affected by MND and would like to contribute to either improving MND care in Australia, or participate in research?
Please follow the links below to see how you can help.

Get Involved
Get involved

National MND community survey
FightMND and MND Australia have collaboratively designed an important NATIONAL SURVEY to explore the impact of MND on individuals. We want to understand how they access care and research in Australia, and their needs and priorities in these areas.
The survey results will ensure that the voices of Australians with lived experience of motor neurone disease are represented in FightMND and MND Australia’s future care and research investments, as well as advocacy work. The survey is open to:
- people living with MND
- current and former carers
- gene carriers
The survey should take 15 – 20 minutes and will close on Friday 7th March 2025.
The National MND Lived Experience Network
FightMND proudly supports the MND Lived Experience Network. The network is a new way to connect people with lived experience of motor neurone disease (MND) with organisations and other groups looking for lived experience input or consultation on MND topics including care, advocacy, information development, or research.
They are looking for people to join the Network, including people:
- with a confirmed diagnosis of MND
- carrying an MND genetic mutation, but not diagnosed with MND
- currently caring for a family member with MND
- who previously cared for a family member with MND.
Find out more and register at https://www.mndaustralia.org.au/get-involved/national-mnd-lived-experience-network
Clinical trials
Clinical trials test new treatments or interventions in people to find out if they are safe or effective. If you would like to participate in a clinical trial, your first port of call would be your neurologist or MND clinic. For a list of clinical trials with Australian location sites, please follow this link on MND Australia’s website.