Running in Steven’s memory: Michelle’s story
Michelle Stepien never saw herself as a runner. Growing up the idea of running for enjoyment seemed foreign. But when COVID hit she decided to give it a try. What started as a simple way to stay active quickly became something more. An outlet that left her feeling strong, capable and empowered. Running was something Michelle did for herself.
AN MND Diagnosis oceans apart
In May 2021, Michelle’s oldest brother, Steven, was diagnosed with motor neurone disease (MND), also known as ALS. Living in Los Angeles with his wife, he received the devastating news during the uncertainty of the COVID-19 pandemic. With Australia’s borders closed, Michelle and her family, based in Melbourne, couldn’t be by his side until early 2022.
By then, MND had already taken so much.
“Steve was already confined to his wheelchair full time, unable to walk, limited mobility in his arms and significant loss of speech,” said Michelle.
During difficult moments running became more than just an outlet for Michelle. It became a way to process. To cope. She ran to clear her mind. To remind herself that movement is a gift.
“When I would find myself struggling to cope, understand and accept that time with Steve was running out, I would go out for a run. Sometimes for fun and sometimes for sanity, either way it was an outlet I picked up and loved how it made me feel.”
Running with purpose
Running is something Michelle does for herself. She loves how it makes her feel. Strong. Powerful.
Fundraising for FightMND has added an even greater purpose to her running journey. By raising awareness and funds, she hopes to support others impacted by this devastating disease while honouring Steve’s legacy.
“Knowing that my efforts to raise awareness and funds makes an impact, makes me feel so many emotions. I’m grateful that I can do what I enjoy and combine it with a cause that I care so much about. I’m proud that I have turned one of the most painful experiences in my life into an opportunity to honour my brother Steve.”
When asked what she’d say to others thinking of joining the fight, Michelle says go for it! Running is hard, but it’s also a privilege. There are many opportunities to sign up as a charity place runners and take on a challenge that’s bigger than themselves.
“I think others should get behind FightMND and sign up to become a charity place runner because you’re doing it for a reason that’s so much bigger than meets the eye. Running is not easy and being able to run means your body allows you to move and do great things. What a personal achievement in itself!”
Every effort counts
Over the past few years, Michelle has seen incredible support from friends, family, and even strangers who have reached out to contribute to her fundraising efforts. Her best friends, Sam and Crystal, have been by her side since day one, running alongside her, pushing her forward, reminding her of her strength.
“I wouldn’t be so far in my running journey if it wasn’t for Sam and Crystal. I remember the first year I signed up to do the Run Melbourne 5km event in 2022 to honour Steve. I created the team ‘Steps for Steve’ to raise money for FightMND. I mentioned it in conversation with Sam and Crystal and they both quickly signed up and helped raise funds.”
“Each year they’ve gotten behind me and showed me their support and love. Always encouraging me on runs to keep going whenever I want to cut it short, stop or think that I couldn’t do it. Like doing our first half marathon last year or reminding me that I am capable to do a full marathon!”
Together, they’ve raised over $7,000 for FightMND. Proof that every effort, no matter how big or small, makes a difference.
Turning experience into purpose
Michelle shares a simple message. If it’s fear or self-doubt holding you back from your next challenge, set those doubts aside and just go for it! Run that marathon, sign up for the charity event or take on a personal goal. Just start. Life moves unpredictably, and you never know what tomorrow will bring.
“I never thought anyone I knew would be diagnosed with MND, let alone my brother. I am so scared at running the full marathon at Melbourne Marathon but why should I not just give it a go!?”
Michelle fundraises for FightMND to transform something that once felt unbearably painful into something meaningful. To make a difference. To honour her brother. Most importantly, it is her way of reminding others that there is always a purpose to be found in every step forward.
Join the fight
When you fundraise for FightMND, you’re doing more than raising vital funds. You’re helping us invest in groundbreaking research and projects supporting Australians living with MND. Whether it is running a marathon, hosting a trivia event or celebrating a special occasion, there are many ways for you to join the FightMND Army and help beat the Beast.
Check out our fundraise for us page learn more about how you can make a difference in this fight against MND.