To cure, to care,
to make aware.
CEO resigns
FightMND CEO, Jamie Howden has resigned from his position deciding to pursue his next exciting executive opportunity.
Jamie has been responsible for delivering several significant and positive outcomes and successes for FightMND during his time leading the Foundation.
The Board of Directors and team at FightMND thank Jamie for his fine contribution to the Foundation across many areas of our operations including Government relations, complex stakeholder management, governance and compliance, major campaigns, key donors, MND research and community fundraising.
We wish Jamie & his family well for the future.
Chemist Warehouse initiates fundraising support
From October 2, for a period of two weeks, Chemist Warehouse customers will have the opportunity to donate to FightMND while in any of the 450 Chemist Warehouse stores nationwide.
Collection tins at checkouts will be available to all customers until October 15, to enable customers to contribute to the fight against MND.
Further to this incredible commitment, Chemist Warehouse are also hosting an online silent auction & raffle to raise additional funds. Click on the button below to take a look at the amazing prizes and items on offer.
The raffle and auction also commences on October 2 and will be drawn on October 31, 2020.
Chemist Warehouse has been a partner of FightMND & our Daniher’s Drive event since 2017 and due to COVID-19 and the cancellation of that event in 2020, Chemist Warehouse has initiated these two additional forms of fundraising to continue their support, and we are extremely grateful.
Challenge yourself
The FightMND 27 Challenge is here
The inaugural FightMND Challenge has arrived and you, your family and friends, workmates, sporting teammates can all get involved to fundraise for FightMND.
It’s free to join and how you get involved to fundraise is entirely up to you.
The challenge is all about getting the FightMND Army together this Spring, to have fun, be active and healthy while doing a physical activity that embraces the number 27
Why 27? The average life expectancy of someone diagnosed with MND is just 27 months – we need to change that!
The challenge runs from September 27 to November 27 and you are asked to complete your challenge over any 27 days during this time.
A Cure Can't Wait
$10.68M boost for MND research
FightMND has announced the commitment of $10.68M in a major funding boost to MND research as we continue the fight to find effective treatments and a cure for the disease, with 16 individual new research projects with some to begin as early as October this year.
This commitment takes the total funds invested into MND research initiatives by FightMND to $48.45 million since the Foundation began in 2014.
Among the new projects funded are eight IMPACT grants which support projects aimed at improving and accelerating the process of bringing new treatments to Clinical Trials while seven Drug Development projects and one Clinical Trial also feature among the projects funded.
Freezing MND in the UK
Thanks to the Wandsworth Demons
The Wandsworth Demons, a club in the AFL London competition, stages the only annual Big Freeze fundraiser outside of Australia and in six years has raised over $45,000 for FightMND
Big Freeze 6
TALLY
$11,900,000
‘The Beast’ is getting nervous
Big Freeze 6 raises $11.9 million
The crusade to beat Motor Neurone Disease has gained significant momentum following the latest edition of FightMND’s major annual fundraising campaign, the Big Freeze.
The Journey Of Your Donation
THANKS TO OUR BIG FREEZE 6
MAJOR RETAIL PARTNERS
Big Freeze 6 beanies were sold in store at Coles and Bunnings nationwide throughout the campaign and we offer our sincere thanks to the entire team at both Coles & Bunnings for their incredible support.
Through the sale of beanies in stores nationwide, Coles raised $5.2 million & Bunnings raised $1.3 million for the fight against MND.
What are we fighting for?
We are fighting to beat 'The Beast'
We want a world without Motor Neurone Disease (MND) and it takes an army of people to help achieve this – and we have the FightMND Army on our side.
Our core aims are to generate greater awareness of the disease, to fund world-class research and drug trials to find an effective treatment and ultimately a cure for Motor Neurone Disease and provide assistive care equipment to many Australians fighting the disease.
There is no known cause, limited knowledge of the natural course of the disease, there is no effective treatment and there is no cure.
We call it ‘The Beast’. This is why we fight.
$48.45m
Committed to MND research initiatives
$14.32m
committed to 11 Clinical Trials
$16.68m
committed to 17 drug development projects
$4.5m
World-first drug screening platform
$3.06m
Other research grants & initiatives
$2.55m
Sporadic ALS Australian - Genomics Consortium
$2.0m
Precision Medicine Program
$3.74m
committed to 15 IMPACT grants
$1.6m
Research fellowships and scholarships
87c
In every dollar raised committed to research projects & care initiatives
COVID-19 & MND
As a community, we are facing many challenges because of Coronavirus (COVID-19).
For people living with MND and their families, these are particularly troubling times, with the disease making them one of the more vulnerable populations if exposed to the virus. Our wish is for them to stay safe and well and keep fighting.
MND Australia is closely monitoring the COVID-19 situation, taking advice from medical experts and is providing regular updates & advice to the MND community on its website.
We wish to share that information with you and will also continue to provide updates.
COVID-19
We have issued a statement in relation to COVID-19 and the current and potential future impact on FightMND
2020 Daniher's Drive cancelled
Sadly, due to the current uncertainty as a result of COVID-19, FightMND has made the difficult and disappointing decision to cancel the 2020 edition of Daniher’s Drive.
The famous ‘road-trip’ won’t go ahead in 2020 but the organising committee are already putting plans in place to ensure that the event next year will be bigger and better than ever before.
Details regarding the 2021 Daniher’s Drive will be released in due course.
Our Shop
Wear Your Support
Join the fight against MND.
Visit our online shop to browse and purchase some of our FightMND apparel, and in doing so, you are continuing to help our fundraising efforts.
What We Do
About FightMND
Our Partners
Our MND stories - meet Terry Roles
Tasmanian Terry Roles was diagnosed with MND in 2019 and he shares his story here
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