Opportunities for people impacted by MND

Get Involved

Get involved

Have you been affected by MND and would like to contribute to either improving MND care in Australia, or participate in research?
Please follow the links below to see how you can help.

FightMND Lived Experience Travel Grant

FightMND is offering travel grants to support people living with, or affected by, MND to attend the 2025 PACTALS Congress, held in conjunction with the 12th MND Australia Care Forum, from 7–9 September 2025. 

This is a unique opportunity to be part of two major events that bring together the global and national MND community to share knowledge, experiences and progress in MND research and care. 

Grant eligibility 

The travel grant is open to:  

  • people living with MND 
  • current and former carers  
  • gene carriers  

What the grant covers 

Registration for PACTALS Congress and the MND Australia Care Forum conference is free.  

The travel grant covers flights and accommodation costs. The grant also covers additional travel related costs such as taxis, rideshares and meals.  

Key dates 

  • Applications open: Monday 23 June 2025 
  • Applications close: Sunday 27 July 2025 

How to apply 

This grant helps ensure lived experience voices are heard and supported. We encourage you to apply and be part of this great event.  

Grant guidelines

The National MND Lived Experience Network

FightMND proudly supports the MND Lived Experience Network. The network is a new way to connect people with lived experience of motor neurone disease (MND) with organisations and other groups looking for lived experience input or consultation on MND topics including care, advocacy, information development, or research.

They are looking for people to join the Network, including people:

  • with a confirmed diagnosis of MND
  • carrying an MND genetic mutation, but not diagnosed with MND
  • currently caring for a family member with MND
  • who previously cared for a family member with MND.

Find out more and register at https://www.mndaustralia.org.au/get-involved/national-mnd-lived-experience-network

Clinical trials​

Clinical trials test new treatments or interventions in people to find out if they are safe or effective. If you would like to participate in a clinical trial, your first port of call would be your neurologist or MND clinic. For a list of clinical trials with Australian location sites, please follow this link on MND Australia’s website.