Helpful resources and support links for Australians impacted by motor neurone disease (MND) to assist with accessing information, services and care support.
MND Resources
FightMND works to support people affected by MND. We do this by funding world-class research and raising awareness of MND. While we are not a care service provider, we know how important it is for people to find the right support at the right time.
In Australia, specialist organisations provide care and support for people living with MND. This includes MND Australia, state MND associations, MND and Me, and other groups supporting the MND community. These organisations offer practical care, key information and support for those affected by MND.
This page provides links and resources to help you find the right care and support services. Whether you are recently diagnosed, supporting someone with MND or seeking specific information, these resources can help you find the information you need.
MND Connect
MND Connect is a service providing specialist information and resources about MND. It is available to people with MND, their families, carers and the professionals who help them.
MND support organisations
In Australia, MND support organisations provide vital support to people living with MND and their families. This includes providing MND advisors and support coordinators to help you navigate NDIS and My Aged Care, and provide guidance and information specific to your state or local area. This includes support with equipment hire, carer services and community programs.
| VIC | MND Victoria 265 Canterbury Rd, Canterbury Vic 3126 Post: PO Box 23, Canterbury 3126 T: 1800 777 175 or (03) 9830 2122 E: [email protected] www.mnd.org.au |
| QLD | MND Queensland 1/89 Factory Road, Oxley QLD 4075 Post: PO Box 470, Inala QLD 4077 T: 1800 777 175 or (07) 3372 9004 E: [email protected] www.mndaq.org.au |
| QLD | MND & Me Cnr Birubi and Stanley Street East, Coorparoo QLD 4151 Post: 5/28 Cavendish Road, Coorparoo QLD 4151 T: 07 3394 5333 E: [email protected] www.mndandme.com.au |
| WA | MND Western Australia Unit 1, 184 Raleigh Street, Carlisle WA 6101 Post: as above T: 1800 777 175 or (08) 6186 4133 E: [email protected] www.mndawa.asn.au |
| NSW, ACT and NT | MND New South Wales Building 4, Gladesville Hospital, Victoria Road, Gladesville NSW 2111 Post: Locked Bag 5005, Gladesville NSW 1675 T: 1800 777 175 or (02) 8877 0999 E: [email protected] www.mndnsw.org.au |
| TAS | MND Tasmania (client services via MND Victoria) Post: PO Box 379, Sandy Bay TAS 7006 T: 1800 806 632 E: [email protected] www.mndatas.asn.au |
| SA | MND South Australia 66 Hughes Street, Mile End SA 5031 Post: PO Box 2087 Hilton Plaza SA 5033 T:1800 777 175 or (08) 8234 8448 E: [email protected] www.mndsa.org.au |
MND clinics
Across Australia, specialist MND clinics provide customised care and expert advice for people with MND. Contact your GP or neurologist to arrange for a referral to one of the specialised clinics below.
| Victoria | Calvary Health Care Bethlehem 476 Kooyong Road, Caulfield South VIC 3162 T: (03) 03 9834 9400 E: [email protected] |
| Motor Neurone Disease Clinic McKellar Centre 45–95 Ballarat Rd, North Geelong VIC 3215 T: (03) 4215 7009 E: [email protected] | |
| Northern Health Progressive Neurological Disease Clinic Bundoora Extended Care Centre 1231 Plenty Road, Bundoora VIC 3083 | |
| South Australia | South Australian MND Multidisciplinary Clinic Flinders Medical Centre Flinders Drive, Bedford Park SA 5042 Contact: Leanne Davis, Coordinator T: (08) 8204 5005 or (08) 8204 4187 E: [email protected] |
| ACT | ACT Multidisciplinary MND Clinic University of Canberra Hospital 20 Guraguma Street, Bruce ACT 2617 Contact: Clinic Coordinator T: 02 5124 0232 E: [email protected] |
| NSW | Calvary Health Care MND Service 91–111 Rocky Point Road, Kogarah NSW 2217 Contact: Donna Berry, Coordinator T: (02) 9553 3444 or (02) 9553 3111 E: [email protected] |
| Liverpool Hospital MND Clinic Corner Elizabeth & Goulburn Streets, Liverpool NSW 2170 Contact via reception (02) 8738 3000 & ask for MND clinic | |
| Macquarie Neurology Clinic Suite 204, Level 2, 2 Technology Place Macquarie University, NSW 2109 Contact: Kristina Barnes, CNC T: (02) 9812 3742 E: [email protected] | |
| Clinical Neurology Neuroscience Research Australia 139 Barker Street, Randwick NSW 2031 T: (02) 9399 1146 E: [email protected] | |
| Murwillumbah MND Clinic Murwillumbah Hospital 8-10 Ewing St, Murwillambah NSW 2484 T: (02) 6672 0274 | |
| Hunter New England MND Multidisciplinary Clinic John Hunter Hospital Lookout Road, New Lambton NSW 2305 Contact: Cathy Bros, Coordinator T: 0408 976 574 E: [email protected] | |
| Illawarra Multidisciplinary MND Service c/- Palliative Care Allied Health Team Unit 28-29 Piccadilly Centre 341 Crown Street, Wollongong NSW 2500 Contact: Anna Fulford, Allied Health Team Leader T: 1300 068 458 E: [email protected] | |
| ALS/MND Multidisciplinary Clinic Brain and Nerve Research Center, Concord Hospital Building 20, Hospital Rd, Concord NSW 2139 Contact: Mary Benjamin T: 02 9767 8447 E: [email protected] Referrals addressed to Prof Steve Vucic or Dr Veena Raykar | |
| Auburn Hospital MND Clinic for Western Sydney and Nepean Blue Mountains 263 Hargrave Road, Auburn NSW 2144 Contact: Andrew Peers, Coordinator T: 0439 987 913 E: [email protected] | |
| WA | Fiona Stanley Hospital MND Clinic Robin Warren Drive, Murdoch WA 6150 T: (08) 6152 0618 |
| Perron Institute MND Clinic 8 Verdun St, Nedlands WA 6009 Contact: Sue Walters, Manager Clinical Services T: (08) 6457 0200 E: [email protected] | |
| Midlands MND Clinic St John of God Hospital 1 Clayton St, Midland WA 6056 | |
| QLD | Princess Alexandra Hospital MND Clinic 199 Ipswich Rd, Woolloongabba QLD 4102 Contact: Lois Quick, Coordinator T: (07) 3156 9419 E: [email protected] |
| Prince Charles Hospital Specialist Outpatient Clinics Rode Road, Chermside QLD 4032 Contact: Lily Tang, Coordinator T: (07) 3139 4207 E: [email protected] | |
| Royal Brisbane and Women’s Hospital Neurology Outpatient Department Butterfield St, Herston QLD 4029 Contact: Lily Tang, Coordinator T: (07) 3646 3111 E: [email protected] | |
| The Sunshine Coast University Hospital MND Clinic 6 Doherty Street, Birtinya QLD 4575 Contact: Dawn Harwood, Coordinator T: (07) 5202 7894 | |
| Gold Coast University Hospital Neurology Service, Level 5, A Block 1, Hospital Boulevard, Southport 4215 | |
| Tasmania | Launceston General Hospital MND Clinic Charles Street, Launceston TAS 7250 Contact: Sharon Wendon, Nurse Practitioner T: 03 67776317 E: [email protected] |
| SA | MND South Australia 66 Hughes Street, Mile End SA 5031 Post: PO Box 2087 Hilton Plaza SA 5033 T:1800 777 175 or (08) 8234 8448 E: [email protected] www.mndsa.org.au |
Lived experience network
The National MND Lived Experience Network (LEN) connects people with lived experience with MND with organisations and other groups seeking their input. Supported by MND Australia and FightMND, the LEN aims to increase engagement with people with lived experience of MND and professionals working in the field.