Challenging 27 her way: Leanne’s story 

Leanne Sklavenitis is someone who loves being on the move. Starting as a fitness instructor back in the 80s, today she is a consultant, coach and professional speaker. Her passion for all things health and fitness, and for helping others achieve their goals, has taken her around the world.  

Leanne was diagnosed with motor neurone disease (MND) in September 2017. While she could no longer participate in fitness classes, this hasn’t stopped her from inspiring and helping others. 

This year Leanne, along with her daughter Maree, is challenging 27 her way, by taking 27 steps every day this September. 

As we reach the halfway point of Challenge 27, the FightMND team sat down with Leanne to learn more about her MND journey, why she is taking on Challenge 27 and her tips for staying motivated. 

When did you notice that something wasn’t quite right? 

Initially, a trip up the stairs at a restaurant left me with what I thought was a soft-tissue knee injury. It took about a month for my knee to recover. I was told at the time that I had possibly twinged a nerve. But, I know my body and something didn’t feel quite right.  

As I was searching for answers, I was becoming more unstable as my legs began to weaken. Over time the signs, like falling off my bicycle for no reason, started to hint at something more. 

In September 2017, 18 months after my knee injury, I received my diagnosis. I had motor neurone disease. 

What role has fitness played in your day-to-day life before and after your diagnosis? 

Exercise and nutrition are so important to overall health and wellbeing. Our bodies are designed to move. From the start, I’ve been determined to keep firing up my muscles to maintain the neural pathways while they were still functioning. It really was a case of ‘Move it. Or lose it.’. 

Even with my diagnosis fitness is my passion, and I’m determined not to give up what I love. While I can’t move my body the way I used to, I know how important exercise is for my mindset and mood – and I’ll look to exercise in whatever way I can! Plus, I still get a natural endorphin high when I train.  

What is something people often think about MND that you want to challenge? 

People might see MND and assume it’s all doom and gloom, but that’s not how I see it. MND is incredibly debilitating, yes, but my mind is still sharp. There is still so much hope and there’s so much that people living with MND can still contribute to our world. Although I might not look the same on the outside, I choose to live a fulfilling life. It’s not about giving up; it’s about deciding to keep going, no matter what. 

Why are you choosing to get involved with the Challenge 27 campaign this year? 

Even before my diagnosis I have strived to be the best version of myself and to mentor and motivate those around me. I’m still able to inspire and help others by sharing my story and the lessons I’ve learnt on my journey of living an awesome life with MND. 

Challenge 27 is one way I can do this. No matter how bad your day is, or whatever adversity you’re facing, it is important to get out there and move. I do it. You can too. It is such a great campaign for a great cause. FightMND gives people hope and if I can be an ambassador and provide that hope where I can, I’ll do it.  

So, what are some of your favourite exercises? 

I’ve always loved to sweat. Anything hardcore like push-ups, weights, or the dreaded burpee, and I was all in. It’s all about the burn! 

After 8 years with MND, I’m fortunate to still bear weight. For me taking 27 steps a day will be a huge challenge. But I love a good challenge and will not shy away from taking it on! 

Now, we’re getting to the mid-way point of Challenge 27. How about your number one tip for someone whose motivation is starting to get a little low? 

Reach out to an accountability buddy. It’s amazing how a quick message can give you that extra push to get moving. I’m also a big fan of rewards. So treat yourself once you’ve done the work! It’s all about making it fun and giving yourself something to look forward to. 

For those looking to unfreeze their fitness routine and get back into exercise, what’s your number one tip? 

You need to schedule it in! Put it on your calendar every day, just like you would any other appointment. And if you can, find a friend to join you – it makes it more fun and keeps you both accountable! 

Challenge 27 your way and show your support 

Challenge 27 is well underway. Until 30 September get active, raise funds and help FightMND work towards our vision of a world fee of MND. 

There is no rule on how to take on 27 your way. Just include 27 into your challenge goal. This can be cycling 27 kilometres, going to 27 fitness classes, or trying 27 different exercises during the month. The possibilities are endless! 

If you can’t participate in Challenge 27, don’t worry, you can still show your support by donating to one of our fantastic participants. Learn more about Challenge 27 and donate today via our website.